Restricted Growth Association

Steph Birch
Acting Chairperson

Hi, I am married to Stephen. Both myself and our son, Sam, have achondroplasia. As Acting Chair I will lead the other trustees in representing the RGA in the best way we can. We will listen to your views and work to fulfil the objects of the Association. If you want to get involved and can offer your time in any way please drop me a line.

TBC
Acting Vice Chair

The Acting Vice Chair position will be filled from one of the current committee following the next meeting of the committee in April 2010. It has been agreed by the committee that this post should be open to all co-opted members with a restricted growth condition and that members interested will be voted in by the committee at this next meeting.

Sharon Cassidy
Treasurer

Hi, I'm Sharon. I live in the West Midlands with my husband and two sons. Myself, my husband and children are of average height. I have a sister with restricted growth. My role as Treasurer involves the various accounting and financial matters of the RGA.

Stephen Birch
Website and ICT

Hi, I am married to Steph and we have a son called Sam. I am average height and Steph and Sam both have Achondroplasia.

In my role as Website and ICT co-ordinator I will be keeping this website updated and managing the office ICT and phone system. If you have any ideas for content to the website I'd love to hear from you. Shortly you should see a major change in the office telephone system making it easier that ever for you to contact the Association Manager.

Chris & Pam Burnell
Adult and Mature Members

We have been members of RGA for many years.  We have both served on previous committees and assisted with the editing of the magazine.  Together we are happy to serve on the new committee respresenting adult and mature members.  We hope to plan a social event for adult/mature members in the near future. If you wish to contact us with ideas please do through the RGA office.

Bev Burkitt
Co-ordinator of Regions

Awaiting photo and personal introduction.

Miranda Button
Children

Hi, I'm Miranda and I’m 21 years old. I have achondroplasia. I'm responsible for children’s issues within the RGA and events for children. Please feel free to contact me with any ideas to promote children’s activities in the RGA.

Chris Herman,
Grants and Fundraising

Awaiting personal introduction.

Steve Hicks
Media

Hi, I’m Steve. I’m married to Alex and we have two children, Isabel and Nathan. I’m responsible for media relations and publicity. Please do contact me if you have any good ideas about how to promote the work of the RGA.

Val Sims
Parent Members

My name is Val Sims, I am a full member of  RGA (formerly ARRG) I was involved in the association from the time of its conception. I am married to Geoff who is average height and have two sons Matthew & Nicky. I am delighted to be appointed Parent Officer, as I enjoy very much communicating and endeavouring to help parents who have had a child with restricted growth. I hope that all parents will feel able to contact me just to chat, ask advice(If I cannot find an answer I will find a person who will!) or to be put in touch with other parents. I look forward to meeting you all in the future, hopefully in this the 40th year of RGA.

Michelle Troughton-Webb,
Young Adults Officer

Hi, my name is Michelle. I'm a single mum to 3 children, one of which, Savannah has achondroplasia, I also have family members with the condition. I've been appointed Young Adults Officer so please feel free to contact me about anything you wish to discuss, I would like to think that I'm easily approachable. I'm looking forward to serving on the commitee and hearing from you.