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Page for Parents

As an association we are often asked by parents for support and guidance on various matters. Recently we have been asked if information for parents could be made available on our website. Over the coming months our webmaster Stephanie will be working closely with our association manager,, in developing this idea - so please make sure you regularly visit this page.

Parents

In the meantime if you are new to the association and a parent we would recommend that you give our association manager a call or drop them a line or two in an email to say 'Hello' - See below for contact details.

Whilst we develop this page parents can of course contact the RGA office at anytime if they are in need of any particular information. If you are a parent and would like to see something particular on this page please send us an email with your suggestion.

RGA's Association Manager

Tel: : 01935 841 364

Emaill: office@restrictedgrowth.co.uk

There are other organisations that we'd recommend that parents get in touch with, and these include:

 

child growth foundation

 

Contact a Family

 

DAA

Remember to keep coming back to this page whilst we develop it.

 

 

  Useful Info.   

Ideal for your child
Specialized Hot Rock bike. The seat sits at a few inches above the top of the base, just take a few inches off the saddle bar to allow it to move further down. It also has a back-pedal brake, which is so important for children with achondroplasia. Easier to ride than the specially-made bike and it's so much cheaper.

Click here to learn about our research project

Other Useful Information

Achondroplasia Adult Charts

Suggested Height Weights for Achondroplasia Adults .

Clinical Reports

Clinical Report on Supervision of Children with Achondroplasia - Contains the achondroplastic growth charts.

Please let us know if you think that there is other additional info. that we should place here to share with members .

 

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